LEONOR PONFERRADA

This session provided basic information of the components necessary to a successful home hemodialysis (HHD) program. Connie Anderson, RN, MBA, Northwest Kidney Center, Seattle, Washington, stressed, first and foremost, the importance of incorporating a philosophy that includes commitment from the administration, not only in terms of financial support, but also incorporating mechanisms for the education of staff nephrologists and the multidisciplinary team involved in the management of HHD patients. She also stressed the importance of an integrated system for training and support of patients. Patient goals, mutually accepted by both staff and patients, must be identified and should include, but not be limited to, rehabilitation, improved survival rates, maximum independence, and fewer hospitalization days. There must also be a means of identifying suitable patients, such as appropriate referral systems, and the development of criteria for patient selection. Written procedures and docu-mentation are necessities. Communication is of utmost importance among the interdisciplinary team.

Tony Goovaerts, RN, nurse manager for a home dialysis program at University Hospital, Brussels, Belgium, addressed the topic of education and training of patients in preparation for HHD. He stressed the importance of having a comprehensive yet flexible education program that takes into account patient differences in gender, age, and socioeconomic and cultural backgrounds. Ideally, a dedicated nursing staff should be designated to do patient education and training, because it takes time to develop the knowledge, skills, and tools requisite for a quality training program. An environment conducive to the teaching-learning process must be provided. A list of theoretical aspects to be covered in the education process includes principles of dialysis, complications of dialysis, diet, medications, and interpretation of blood results. The skills and practical aspects of dialysis that must be taught include obtaining weight and blood pressure measurements, setting up and dismantling the dialysis machine, cannulation, management of complications, and management of emergencies. The use of a training manual and a variety of teaching aids such as posters, videotapes, etc., is helpful and simplifies the teaching-learning process. The traditional training for HHD takes 8 – 10 weeks, with the training done mainly during the time when the patients receive three-times weekly dialysis treatments. The major drawback of HHD training compared to peritoneal dialysis training is the much longer training period for the patient and partner. Mr. Goovaerts described an accelerated training program that shortened the training period to 3 – 5 weeks. In this program, the patient’s objectives and repertoire of skills remain the same; but the focus is more on short-term objectives, and techniques are broken down into smaller components. Patients are expected to train for 4 full days each week. The shorter training period has enabled some patients to utilize paid partners and community nurses as backup.

Nocturnal home hemodialysis (NHHD) can be easily integrated into an existing home hemodialysis program. Michaelene Ouwendyk, RN, University of Toronto, Toronto, Ontario, Canada, reviewed training techniques and shared methods used by centers training patients for NHHD. The time required for education and training may vary from 2 days to 8 weeks, depending on the patient’s hemo-dialysis experience. Patients are initially trained to do conventional dialysis during the day, and eventually are trained to perform nocturnal dialysis on consecutive nights. As in conventional HHD, training strategies for NHHD include a partnership between nurse and patient, the use of a training manual, and the use of teaching aids such as posters, pictures, and video tapes. Evaluation of patient learning is emphasized. The training staff make sure that the patient can correctly and independently perform all procedures a minimum of three times prior to being discharged home. Patients are also asked to evaluate the training experience, and this is felt to be the key to improving the training program. For NHHD, safety is a major focus: locking boxes are used to secure bloodlines and patients must be well versed in securing extracorporeal connections. Patients are taught to recognize and immediately report signs and symptoms of a potential problem. Patients are also made aware of the potential for increased blood loss since they are dialyzing every day.

Follow-up when the patient is performing HHD at home is just as important as the initial education and training of patients. According to Leonor Ponferrada, RN, BSN, Dialysis Clinic, Inc., Columbia, Missouri, the most important components of follow-up care include: patient access to the multidisciplinary team, safety of procedures and equipment, and communication with the health care team. Monitoring medical and psychosocial aspects such as adequacy of dialysis, anemia management, blood pressure control, and adjustment to dialysis must be done. Results of a survey of HHD programs were reviewed, and conditions from the Health Care Financing Administration (HCFA) ESRD regulations were cited in relation to each of the components of follow-up care.